Thursday, April 22, 2010
Day to Day on my -C- Journey
THANKS FOR THE breastcancer.org SITE SO I CAN KEEP UP WITH WHAT'S GOING ONE FROM DAY TO DAY MINUTE TO MINUTE, AS I NEED, THANK YOU SOOOO MUCH!
This is my journey on the biggest rollacoaster ride ever!!!!
July 23, 2009 Check up with primary heath care, because I noticed a lump (Dr. Kay Fin Law)
July 30, 2009 Complete physical, pap, blood tests, sugar diabetes, cholesterol, eyes,etc.
August 5, 2009 Dr. Kay scheduled a mammogram & an ultrasound, and a vaginal ultrasound, which I did not like at all!!! (Women's Imaging)
August 12, 2009 ultrasound guided "core biopsy" L. Breast took two samples (painful as Hades) IT HURT I CRIED, A LOTThis test felt like I had a branding iron sent through my entire breast, and stayed painful for quite some time thereafter!!!
August 13, 2009 confirmed diagnosis cancer L. Breast
August 17, 2009 M.R.I. to check R. & L. Breast for futher diagnosis purposes. Now they want a biopsy for the R. Breast as well. OH NO!!! I freaked out and cried, because of how bad the first one was. I received notice of this by voice mail. I was driving and had to pull over because I almost lost it on the road!!! I was so frigging scared.
August 19, 2009 ultrasound guided "core biopsy" R. Breast, not painful this time :-) YEAH August 19, 2009 meet surgeon Dr. Snyder - discussed my diagnosis some. 2.5cm lump, estrogen positive, invasive, how they will check my guardian nodes, what would happen, etc.
August 20, 2009 Recieved diagnosis on R. Breast, it was NEGATIVE!
August 20, 2009 Set up appt. for pre-op Sept. 2nd, & surgery for
Sept. 3rd.Sept. 01, 2009 Requested anti-depressant from my health care physician, I will pick them up and start them on Wed. This is my scheduled pre-op day.Dr. Kay Fin law>Zoloft
Sept. 02, 2009 Scheduled for pre-op @ 11:30 am (I have my questions & recorder ready)
Sept. 03,2009 Scheduled Surgery???????? Talk to y'all later, much later!!! to fill in the blanks!Went to TMH for my surgery. I was a little anxious and my 8:30 scheduled appointment turned out to be about 1:00 that afternoon. I was being prepped for the lumpectomy, and I was watching the core needle for the surgery being put into my L. breast. Then as it touched my cancerous mass, the pain was again unbelievable. He told me to breath, I started breathing like a woman does as she goes into labor, and he said one last push. He had to get it into the center of the affected area. As it entered, I SCREAMED loudly. He said to quickly get me up to the surgery area and begin meds immediately even if surgery was still going to be a while. I believe they thought I was going into shock. My area of cancer was sooooooo painful, unlike anything seen before. Just like when they performed the biopsy, the pain was like a branding iron piercing into my breast and then doubled with the feeling of an electrical shock.~~~~~~~~~~~It's now time!!Dr. Snyder began the surgery. Lumpectomy, followed by removing three sentinel nodes. When I came out of my sleep in the recovery room, my husband turned to me and said, "Baby, Dr. Synder took out three sentinel nodes and they where all negative." I was so relieved by the news I instantly felt like I was better. I was given my instructions to return Friday Sept. 11, 2009 for my post-op follow up appt. released and went home. I recouped for 4 days, I must say I felt pretty good for the most part.I have returned to work
Tues.the 8th. I have light duty work so it is not a problem for me being there. My treatments should JUST be radiation and hormone blockers, but my surgeon said it's up to the oncologist. So, until Friday I won't know for sure.Sept.11th:follow-up was bad news,turned into rediognosis because one of the sentinal nodes had a 2mm Cancerous node! I know am scheduled for anothber surgery and possibe chemo now in addition to the rads treatments. I'll speak to Sue Fishara about the onco DX even though it's in the NODE! 2nd opinion!My NEW surgery date again is Sept17th. Complete auxillary disection, the removal 2/3's of my lymph nodes I will KEEP FIGHTING!!!!
Sept. 16, 2009 Happy Birthday to my mom.
I'm getting things packed and ready to go for my overnight stay. As well getting mentally ready for tomorrow's surgery. Axillary Dissection of 2/3rd. Lymph Nodes, say a prayer & hold my hand Becky!!!! (This is my sissy she passed away from cancer but was a brave girl)
Sept. 17,2009; Surgery by Dr. Synder for a complete Axillary Dissection of the Lymph Nodes. Stayed overnight in the hospital. This was much more painful than the previous surgey. I felt as if my arm has been broken again, I will have to do serious rehab! I have a drain tube coming out from under my arm, uncomfortable and hurts as well. I take readings of the fluids that drain 2-3 times a day. When they level out to 30ML per day for two days in a row I can have them taken out. I can not wait!!!
Sept.18, 2009:Released from the hospital by choice. I choose my husband to be my caretaker, and thank the Lord Sweet Jesus I did. He has been a wonderful nurse!!!! Took excellent care of me, feed me, clothed me, washed me. He didn't even hurt me when he had to strip my drain tube each time. (Unlike a med at the hospital) So, my choice to go home was good for me.
Sept.20, 2009 Feeling MUCH better since the surgery. I'm Soooooo, ready to get on with my life!
Sept. 21, 2009: Feeling much better, returned to work. I have light duty type work and can handle it OK. Dealing with the drain is a nuisance however. But, I guess I need it.
Sept.23,2009: spoke with Sue, this afternoon the ARNP and she said my drain tube will be taken out next Thursday and I will see my Radiology Ongologist also on the same day and then I will (should) know how the path of my journey will continue.
Sept. 24, 2009: Recieved call that I had 21 more nodes removed during the surgery, only had one more that was positive. It was not one of the end ones that where special marked, which is a good piece of news. GOT my appt. for my hemotologist today with a Dr. Mabrey and is scheduled for tomorrow!! Finally, this is the oncologist who decides what type of chemotherapy treatment I'll be given.
Sept25,2009:Dr.Mabrey@11:30am,my prognosis was that I WILL receive chemo + radiation+ hormone therapy. Exact dosage + time frame will be decided when he and the radiologists and my surgeon get together and we will all discuss the path reports. I will most likely start the chemo end of October.
Sept.28,2009, My drain is still producing over 30ML and appears a little red around the opening of the drain, so I need to call Dr. Snyder's office for an opinion on status.Oct. 1, Sue remvoed the drain,slightly painful. I do have an infection, so I was put on antibiotics for the next two weeks.She has also scheduled me for my port placement in two weeks with Dr. Synder at TMH, as long as my follow up next week is good and my infection is gone.I'm researching different type of chemotherapies I can discuss with my hematologist to know what is best for me, so when I see Dr. Mabrey next week I'll be ready!
Soooooo many Dr's
Soooooo confusing!!
To be continued ,SOMEDAY,SOMEWAY,A-C-CURE
This is my journey on the biggest rollacoaster ride ever!!!!
July 23, 2009 Check up with primary heath care, because I noticed a lump (Dr. Kay Fin Law)
July 30, 2009 Complete physical, pap, blood tests, sugar diabetes, cholesterol, eyes,etc.
August 5, 2009 Dr. Kay scheduled a mammogram & an ultrasound, and a vaginal ultrasound, which I did not like at all!!! (Women's Imaging)
August 12, 2009 ultrasound guided "core biopsy" L. Breast took two samples (painful as Hades) IT HURT I CRIED, A LOTThis test felt like I had a branding iron sent through my entire breast, and stayed painful for quite some time thereafter!!!
August 13, 2009 confirmed diagnosis cancer L. Breast
August 17, 2009 M.R.I. to check R. & L. Breast for futher diagnosis purposes. Now they want a biopsy for the R. Breast as well. OH NO!!! I freaked out and cried, because of how bad the first one was. I received notice of this by voice mail. I was driving and had to pull over because I almost lost it on the road!!! I was so frigging scared.
August 19, 2009 ultrasound guided "core biopsy" R. Breast, not painful this time :-) YEAH August 19, 2009 meet surgeon Dr. Snyder - discussed my diagnosis some. 2.5cm lump, estrogen positive, invasive, how they will check my guardian nodes, what would happen, etc.
August 20, 2009 Recieved diagnosis on R. Breast, it was NEGATIVE!
August 20, 2009 Set up appt. for pre-op Sept. 2nd, & surgery for
Sept. 3rd.Sept. 01, 2009 Requested anti-depressant from my health care physician, I will pick them up and start them on Wed. This is my scheduled pre-op day.Dr. Kay Fin law>Zoloft
Sept. 02, 2009 Scheduled for pre-op @ 11:30 am (I have my questions & recorder ready)
Sept. 03,2009 Scheduled Surgery???????? Talk to y'all later, much later!!! to fill in the blanks!Went to TMH for my surgery. I was a little anxious and my 8:30 scheduled appointment turned out to be about 1:00 that afternoon. I was being prepped for the lumpectomy, and I was watching the core needle for the surgery being put into my L. breast. Then as it touched my cancerous mass, the pain was again unbelievable. He told me to breath, I started breathing like a woman does as she goes into labor, and he said one last push. He had to get it into the center of the affected area. As it entered, I SCREAMED loudly. He said to quickly get me up to the surgery area and begin meds immediately even if surgery was still going to be a while. I believe they thought I was going into shock. My area of cancer was sooooooo painful, unlike anything seen before. Just like when they performed the biopsy, the pain was like a branding iron piercing into my breast and then doubled with the feeling of an electrical shock.~~~~~~~~~~~It's now time!!Dr. Snyder began the surgery. Lumpectomy, followed by removing three sentinel nodes. When I came out of my sleep in the recovery room, my husband turned to me and said, "Baby, Dr. Synder took out three sentinel nodes and they where all negative." I was so relieved by the news I instantly felt like I was better. I was given my instructions to return Friday Sept. 11, 2009 for my post-op follow up appt. released and went home. I recouped for 4 days, I must say I felt pretty good for the most part.I have returned to work
Tues.the 8th. I have light duty work so it is not a problem for me being there. My treatments should JUST be radiation and hormone blockers, but my surgeon said it's up to the oncologist. So, until Friday I won't know for sure.Sept.11th:follow-up was bad news,turned into rediognosis because one of the sentinal nodes had a 2mm Cancerous node! I know am scheduled for anothber surgery and possibe chemo now in addition to the rads treatments. I'll speak to Sue Fishara about the onco DX even though it's in the NODE! 2nd opinion!My NEW surgery date again is Sept17th. Complete auxillary disection, the removal 2/3's of my lymph nodes I will KEEP FIGHTING!!!!
Sept. 16, 2009 Happy Birthday to my mom.
I'm getting things packed and ready to go for my overnight stay. As well getting mentally ready for tomorrow's surgery. Axillary Dissection of 2/3rd. Lymph Nodes, say a prayer & hold my hand Becky!!!! (This is my sissy she passed away from cancer but was a brave girl)
Sept. 17,2009; Surgery by Dr. Synder for a complete Axillary Dissection of the Lymph Nodes. Stayed overnight in the hospital. This was much more painful than the previous surgey. I felt as if my arm has been broken again, I will have to do serious rehab! I have a drain tube coming out from under my arm, uncomfortable and hurts as well. I take readings of the fluids that drain 2-3 times a day. When they level out to 30ML per day for two days in a row I can have them taken out. I can not wait!!!
Sept.18, 2009:Released from the hospital by choice. I choose my husband to be my caretaker, and thank the Lord Sweet Jesus I did. He has been a wonderful nurse!!!! Took excellent care of me, feed me, clothed me, washed me. He didn't even hurt me when he had to strip my drain tube each time. (Unlike a med at the hospital) So, my choice to go home was good for me.
Sept.20, 2009 Feeling MUCH better since the surgery. I'm Soooooo, ready to get on with my life!
Sept. 21, 2009: Feeling much better, returned to work. I have light duty type work and can handle it OK. Dealing with the drain is a nuisance however. But, I guess I need it.
Sept.23,2009: spoke with Sue, this afternoon the ARNP and she said my drain tube will be taken out next Thursday and I will see my Radiology Ongologist also on the same day and then I will (should) know how the path of my journey will continue.
Sept. 24, 2009: Recieved call that I had 21 more nodes removed during the surgery, only had one more that was positive. It was not one of the end ones that where special marked, which is a good piece of news. GOT my appt. for my hemotologist today with a Dr. Mabrey and is scheduled for tomorrow!! Finally, this is the oncologist who decides what type of chemotherapy treatment I'll be given.
Sept25,2009:Dr.Mabrey@11:30am,my prognosis was that I WILL receive chemo + radiation+ hormone therapy. Exact dosage + time frame will be decided when he and the radiologists and my surgeon get together and we will all discuss the path reports. I will most likely start the chemo end of October.
Sept.28,2009, My drain is still producing over 30ML and appears a little red around the opening of the drain, so I need to call Dr. Snyder's office for an opinion on status.Oct. 1, Sue remvoed the drain,slightly painful. I do have an infection, so I was put on antibiotics for the next two weeks.She has also scheduled me for my port placement in two weeks with Dr. Synder at TMH, as long as my follow up next week is good and my infection is gone.I'm researching different type of chemotherapies I can discuss with my hematologist to know what is best for me, so when I see Dr. Mabrey next week I'll be ready!
Soooooo many Dr's
Soooooo confusing!!
To be continued ,SOMEDAY,SOMEWAY,A-C-CURE
SomeDaySomeWay A-C-CURE
Biography I still don't know what the HELL is going on! I've been confused since this ride started. Just trying to understand the lingo, chemo-brain, rads, DX,blah,blah,blah. Appointments out the kazoo.I don't know if I'm coming or going, maybe sometimes both at the same time.It's been a whirlwind, a spin, a roller coaster ride. BUT, I still don't have enough answers. Everyone else says everyone else will tell you what is going on. Then I still know nothing! I don't know an oncologist, from a surgeon, to a whatever specialist, it's all a new language. I truly am just freaking out!!~~
Diagnosis: 8/13/2009,
ILC, 2cm, Stage II,
Grade 2, 2/24
NODES: 1=1mm +1= 6mm,
ER+/PR+, HER2-
Diagnosed: August 13, 2009
Type: Invasive or Infiltrating Lobular Carcinoma
Recurrent? No recurrence
Metastatic? YES
Stage: Stage II
Lymph Nodes Removed: 24
Positive Lymph Nodes: 2
Tumor Size: 2cm-2.9cm
Tumor Grade: Grade 2 or medium grade
Hormone Receptor Status: Tumor has both estrogen and progesterone receptors
HER2/neu Status: Tumor does not have an excess of HER2/neu receptors or genes
SomeDay,SomeWay, A--C--CURE__
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